We would like to include you or your loved one in our video slideshow. The video will be presented at our exhibit booth at the upcoming 2026 Society for Neuro-Oncology Annual Meeting, as well as other meetings in the future.
This is a chance for us to show our faces and make ourselves heard.
We want to show how LM affects people of all ages, genders, and races. People in countries throughout the world. People with different primary cancers. We want to show how widespread this is becoming and the critical need for new treatments. We want people to see that we are united as a community to fight for better care.
We all deserve access to clinical trials, accurate diagnostic tools, effective treatments, and supportive care. Now we need to have our voices heard from around the world.
We have made it easy for each and every one of you to participate. This includes
- People living with LM
- Caregivers of people living with LM
- People/caregivers who have lost their loved ones to LM
- Clinicians who care for / about patients with LM
- Researchers who are working to make a difference in LM
- Company reps who know the importance of research in LM
Please fill out the form below.
Here are some ideas/prompts for the short statement field below. These are just examples! Feel free to share what feels right for you.
About your person:
“Theo was a bright light and friend to all who knew him. What he went through was unimaginable and unfair. We desperately need treatments so other don’t lose their kids to LM.”
About yourself:
“I’ve been living with LM for 2 years. And I will keep fighting so I can spend as much time as possible with my kids and make memories with my family.”
About LM/Diagnosis:
“We struggled to get an LM diagnosis. And it took us months to find a treatment. We worry every day that the treatment will stop working.”
“There were no clinical trials available to us. We lost our daughter just 2 months after diagnosis.”
About your work:
“My research focuses on finding better treatments. People shouldn’t have to struggle to find something that will help them survive and maintain their quality of life.”
“I’ve cared for so many patients over the years. We need to do better. I can count my patients who are currently surviving on one hand.”
Please keep your statement relatively short. We will edit if needed for length but will keep the sentiment of your statement accurate.